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Resources

Resources for patients, carers, clinicians, and advocates

The following resources have been collated from partners and from across the internet, to aid in understanding kidney transplantation, waitlisting, and other related supports for Aboriginal and Torres Strait Islander people. 

If you have a resource you think could help Community and clinicians to understand and improve access to transplantation, please send it through to us at info@niktt.com.au.

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Health Report: Indigenous people less likely to be waitlisted for a kidney transplant

Health Report: Indigenous people less likely to be waitlisted for a kidney transplant

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State/Territory:

Author:

Audio

National

ABC Radio National

This health report from ABC Radio National features NIKTT Co-Chairs Professors Stephen McDonald and Jaquelyne Hughes. They discuss a study written by NIKTT collaborators that found while eight per cent of non-Indigenous dialysis patients were waitlisted, just two per cent of Aboriginal and Torres Strait Islander patients were.

Kidney Transplant - my journey

Kidney Transplant - my journey

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State/Territory:

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Video

WA

Government of Western Australia, North Metropolitan Health Service

This animated video aims to provide Aboriginal and Torres Strait Islander patients from non-metropolitan areas of WA with information on the process involved in getting a kidney transplant.

The video includes a concise and culturally appropriate overview of a patient’s journey, including learning about kidney disease, treatment options, receiving a new kidney transplant, and life post-kidney transplant.

Kidney health in First Nations Australians: educational flipchart

Kidney health in First Nations Australians: educational flipchart

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Flipchart

National

Kidney Health Australia

This educational flipchart is a health practice resource that aims to provide Aboriginal and Torres Strait Islander people with information about kidney disease.

Deciding to Donate

Deciding to Donate

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Author:

Brochure

WA

DonateLife

This brochure, created in partnership with DonateLife WA, is for Aboriginal and Torres Strait Islander people wanting to learn more about what organ donation means, deciding to donate, and how to become a donor.

First Nations: The Organ and Tissue Donation Story

First Nations: The Organ and Tissue Donation Story

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State/Territory:

Author:

Brochure

National

DonateLife

This longer brochure details information on what a transplant is, what organ donation is, where people can register to become an organ donor, how families are involved in organ donation, what brain and circulatory death means, and what happens to organs when they are donated.

First Nations: Organ donation brochure by Little Rocket

First Nations: Organ donation brochure by Little Rocket

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State/Territory:

Author:

Brochure

National

DonateLife

This brochure was designed for communities to learn more about organ donation and how that can help communities stay strong.

First Nations: Organ and Tissue Donation Resource

First Nations: Organ and Tissue Donation Resource

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State/Territory:

Author:

Brochure

National

DonateLife

This brochure encourages Aboriginal and Torres Strait Islander people and communities to learn more about organ donation.

Recommendations for culturally safe and clinical kidney care for First Nations Australians

Recommendations for culturally safe and clinical kidney care for First Nations Australians

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State/Territory:

Author:

Guideline

National

CARI Guidelines

These guidelines, Recommendations for culturally safe and clinical kidney care for First Nations Australians, were developed by Caring for Australians and New Zealanders with Kidney Impairment (CARI) and provides specific guidelines that aim to improve the equity of health systems for the management of chronic kidney disease (CKD) among Aboriginal and Torres Strait Islander people.

The development of the Recommendations included consultation with Aboriginal and Torres Strait Islander communities (via Yarning Kidneys and Catching Some Air), a systematic review of the literature using medical literature databases and the Australian Indigenous HealthInfoNet, oversight by a working group with expertise in clinical nephrology, nursing, Aboriginal and Torres Strait Islander health, lived experience of CKD, health economics and cultural safety, and peer review by individual experts and peak bodies in kidney health for Aboriginal and Torres Strait Islander people.

Consumer Summary of First Nations Australians Guidelines

Consumer Summary of First Nations Australians Guidelines

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State/Territory:

Author:

Guideline

National

CARI Guidelines

This factsheet provides consumer information on the CARI Guidelines Recommendations for culturally safe and clinical kidney care in First Nations Australians. The factsheet answers the following questions: What should I know about chronic kidney disease (CKD) and being a First Nations Australian? As First Nations Australians, what should we look out for to care for our kidneys? What can I do about CKD? How should health services support First Nations Australians with CKD?

Diabetes and your kidneys

Diabetes and your kidneys

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State/Territory:

Author:

Factsheet

National

Diabetes Australia

This factsheet was developed for Aboriginal and Torres Strait Islander people living with diabetes. It provides information about why kidneys are important for health, who can get kidney problems, what can happen to kidneys, ways to prevent kidney problems, the signs of kidney damage, the tests to detect kidney problems, treatment for kidney problems, and information on infections that may occur.

When someone close to you has acute post-streptococcal glomerulonephritis

When someone close to you has acute post-streptococcal glomerulonephritis

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Author:

Factsheet

NT

Northern Territory Health

This factsheet provides information on what do to when someone has acute post-streptococcal glomerulonephritis (APSGN). It covers what APSGN is and how it is caused, the symptoms of APSGN, what to do to stop APSGN from spreading, and when to seek medical attention.

Organ Donation - Giving Life (Pitjantjatjarra)

Organ Donation - Giving Life (Pitjantjatjarra)

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State/Territory:

Author:

Video

NT

italk Studios

This video, with an introduction in Pitjantjatjarra, aims to provide Aboriginal and Torres Strait Islander people with information about organ donation. It includes an animated story of a family discussing organ donation for their sick relative, and covers what organ donation is, what the process involves and how it can benefit others. This was produced by italk Studios, the Northern Territory Government and Flinders University, and funded by the the Organ and Tissue Authority.

Organ Donation - Giving Life (Warlpiri)

Organ Donation - Giving Life (Warlpiri)

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State/Territory:

Author:

Video

NT

italk Studios

This video, with an introduction in Warlpiri, aims to provide Aboriginal and Torres Strait Islander people with information about organ donation. It includes an animated story of a family discussing organ donation for their sick relative, and covers what organ donation is, what the process involves and how it can benefit others. This was produced by italk Studios, the Northern Territory Government and Flinders University, and funded by the the Organ and Tissue Authority.

Organ Donation - Giving Life (Arrernte)

Organ Donation - Giving Life (Arrernte)

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State/Territory:

Author:

Video

NT

italk Studios

This video, with an introduction in Arrernte, aims to provide Aboriginal and Torres Strait Islander people with information about organ donation. It includes an animated story of a family discussing organ donation for their sick relative, and covers what organ donation is, what the process involves and how it can benefit others. This was produced by italk Studios, the Northern Territory Government and Flinders University, and funded by the the Organ and Tissue Authority.

Organ Donation - Giving Life (English)

Organ Donation - Giving Life (English)

Resource type:

State/Territory:

Author:

Video

NT

italk Studios

This video aims to provide Aboriginal and Torres Strait Islander people with information about organ donation. It includes an animated story of a family discussing organ donation for their sick relative, and covers what organ donation is, what the process involves and how it can benefit others. This was produced by italk Studios, the Northern Territory Government and Flinders University, and funded by the the Organ and Tissue Authority.

Diagnostic Pathway for Chronic Kidney Disease (CKD) in the Kimberley

Diagnostic Pathway for Chronic Kidney Disease (CKD) in the Kimberley

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State/Territory:

Author:

Guideline

WA

Kimberley Renal Services

This diagnostic guideline has been adapted from the KHA CKD Management in General Practice Handbook 3rd ed. to better serve the needs and requirements of diagnosing CKD in the remote Kimberley area of Western Australia.

Kimberley Clinical Guidelines: Chronic Kidney Disease

Kimberley Clinical Guidelines: Chronic Kidney Disease

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State/Territory:

Author:

Guideline

WA

Kimberley Aboriginal Health Planning Forum

This clinical guideline has been developed from a desire to standardise the screening for, and management of, health conditions more prevalent in the Kimberley, and in recognition that the management of these conditions differs from standard management due to the extreme remoteness of the area. They have been developed by multidisciplinary teams of local health care professionals based on local research findings, and established best practices adapted to local conditions.

HealthInfoNet: Kidney Health

HealthInfoNet: Kidney Health

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State/Territory:

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Website

National

HealthInfoNet

This website is a national database of resources, publications, policies, programs, and organisations relating to kidney health and Aboriginal and Torres Strait Islander people.

Getting the Call

Getting the Call

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Author:

Video

National

NIKTT

This video is an animated reenactment of what it's like for an Aboriginal man in Western Australia to get the call for a kidney transplant. The audio for this reenactment was recorded live during the 2025 NIKTT Gathering. Thanks to the audio actors, Richard Jenkins and Andrew Mallet.

Journey through the Royal Adelaide Hospital for Kidney Transplant

Journey through the Royal Adelaide Hospital for Kidney Transplant

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Video

SA

COMPASS

This video demonstrates what patients may experience getting to, being admitted, and recovering from surgery when traveling to the Royal Adelaide Hospital for a kidney transplant.

Introducing the COMPASS Patient Navigators

Introducing the COMPASS Patient Navigators

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Video

SA

COMPASS

Meet the COMPASS Patient Navigators from the Royal Adelaide Hospital and learn about how they help Aboriginal and Torres Strait Islander people living with kidney disease and navigating kidney transplantation services.

Kidney health among Aboriginal and Torres Strait Islander people

Kidney health among Aboriginal and Torres Strait Islander people

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State/Territory:

Author:

Video

National

Australian Indigenous HealthInfoNet

This short animated video highlights a number of key facts about the kidney health of Aboriginal and Torres Strait Islander people. This video is based on the review of kidney health among Aboriginal and Torres Strait Islander people in 2020.

Kidney stories toolkit

Kidney stories toolkit

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Author:

Toolkit

National

Kidney Health Australia

Explore personal kidney stories to understand how the kidneys work, what happens when they become sick, living with kidney disease, treatment pathways, and tips for healthy living and eating. These individual Kidney Stories are available for download. If you're a health professional, you may wish to print the sheets in colour and go through them with your patients.

Am I On The List?

Am I On The List?

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Author:

Video

VIC

St Vincent's Hospital

Listen to Kim and Trent as they share their stories about receiving a kidney transplant. If you have kidney disease, ask your doctor: Am I On The List?

Caring for your kidneys

Caring for your kidneys

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State/Territory:

Author:

Factsheet

QLD

Queensland Aboriginal and Islander Health Council

Learn about how to care for kidneys to slow down kidney disease progression in Stages 2 and 3a with dialysis treatment options.

Oral health and chronic kidney disease

Oral health and chronic kidney disease

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Author:

Video

NT

Northern Territory Department of Health

A short animated video that talks about the connection between oral health and chronic kidney disease (CKD).

Aboriginal chronic kidney disease videos

Aboriginal chronic kidney disease videos

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State/Territory:

Author:

Video

NSW

NSW Government

Aunty Liz shares her lived experience with chronic kidney disease. She explains the healthcare-related experiences of Aboriginal people, including her journey of racism, mistrust, empowerment and taking back control.

Bush Tucker in Kidney Failure and Diabetes

Bush Tucker in Kidney Failure and Diabetes

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State/Territory:

Author:

Book

NSW

John Hunter Hospital

This book has been put together for people with chronic kidney disease who wish to eat Indigenous foods. It is designed to assist patients and their dietician to make choices of Indigenous foods.

Living Strong: Healthy Lifestyle Cookbook

Living Strong: Healthy Lifestyle Cookbook

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State/Territory:

Author:

Book

QLD

Queensland Health

This cookbook provides a variety of healthy recipe ideas and some traditional cooking for patients and their family to enjoy. The recipes are provided to encourage people to use more vegetables, fruit, lean meat and fish to make quick and easy nutritious meals.

What do kidneys do?

What do kidneys do?

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Factsheet

National

Kidney Health Australia

Learn all about what your kidneys do and how they flush out all the rubbish.

Who needs a Kidney Health Check?

Who needs a Kidney Health Check?

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Author:

Factsheet

National

Kidney Health Australia

Learn about who needs a Kidney Health Check and what a Kidney Health Check is.

How can I keep my kidneys healthy and strong?

How can I keep my kidneys healthy and strong?

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State/Territory:

Author:

Factsheet

National

Kidney Health Australia

Learn about how people can keep their kidneys healthy and strong.

What is chronic kidney disease?

What is chronic kidney disease?

Resource type:

State/Territory:

Author:

Factsheet

National

Kidney Health Australia

Learn about chronic kidney disease (CKD) and the stages of CKD.

The National Indigenous Kidney Transplantation Taskforce is funded by the Commonwealth, represented by the Department of Health, in contract with the Transplantation Society of Australia and New Zealand (TSANZ) and the South Australian Health and Medical Research Institute (SAHMRI), housed within Australia and New Zealand Dialysis and Transplant Registry (ANZDATA). The NIKTT's main operations take place on Kaurna Country. 

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