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Connecting Our Mob: Patient navigators As Sustainable Supports

About COMPASS

COMPASS is a co-designed project that brings together the lived experiences, research expertise, and voices of Community to implement a sustainable, coordinated model of kidney care for Aboriginal and Torres Strait Islander peoples. Through our research, we aim to understand how coordinating Patient Navigator programs across four settings (Port Augusta, Adelaide, Alice Springs, and Darwin) can help facilitate better care and outcomes for patients. 

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COMPASS has been funded by a Medical Research Future Find (MRFF) grant from the National Health and Medical Research Council (NHMRC). 

Our Aims

Using decolonising research methodologies such as Health Journey Mapping, Dadirri, Ganma and Yarning Circles, we aim to:

research

Find out how coordinated Patient Navigator programs impact patient care and wellbeing

Support

Determine the best support systems for Patient Navigators

improved Healthcare

Understand how Patient Navigators can be best integrated into the healthcare system 

Cultural Safety

Investigate the impact of Patient Navigators on the general cultural awareness of staff working in the healthcare system

COMPASS Artwork

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"Journey" is a digital artwork created by Kidney Warrior and artist Lili Simpson-Lyttle to visually tell the story of the COMPASS project. The piece has been carefully constucted using various icons that come together to form the shape of a kidney, illustrating the many different parts of the kidney journey. It highlights how Patient Navigators—individuals with lived experience who guide others through the process—connect all these elements together.


At the core of the artwork are the roads, symbolising the shared pathway that connects individuals as they move through their kidney journey. These roads also represent the role of Patient Navigators, who "walk alongside" and assist patients in navigating their path. The icon of people talking represents the Patient Navigators themselves, who act as bridges between the healthcare system and the community, offering hope, support, and guidance along the way. 


The medication and heart icons represent the medical aspect of the kidney journey, an area where Patient Navigators use their own lived experience to support patients. However, the story extends beyond just the medical side. The gathering symbol reflects the coming together of people with similar experiences—both navigators and patients—while the meeting place symbol represents the  different paths individuals take in their journey, which may require travel away from home to the big city for treatment. Having the support of a Patient Navigator has shown to make this journey less frightening. 


Icons representing South Australia and the Northern Territory represent the Patient Navigator project sites in COMPASS and the widespread network of support available across multiple regions. The Aboriginal and Torres Strait Islander flags represent the communities this project serves and was created by, whilst the blue and ochre color scheme reflects the unique landscapes and waters of each participating region. 


Finally, the group of people icon symbolizes the kidney community—patients, families, and healthcare staff—who come together to share their stories, support one another, and help create a network of care. Together, these icons form the shape of a kidney, reminding us that the journey is about much more than the disease. It’s about the connections we make, the wisdom shared by those who’ve lived through it, and the strength that comes from navigating this path together.
“Journey” is a visual celebration of the people who have walked the kidney disease path, particularly the Patient Navigators whose lived experience allows them to light the way for others. 

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The National Indigenous Kidney Transplantation Taskforce is funded by the Commonwealth, represented by the Department of Health, in contract with the Transplantation Society of Australia and New Zealand (TSANZ) and the South Australian Health and Medical Research Institute (SAHMRI), housed within Australia and New Zealand Dialysis and Transplant Registry (ANZDATA). The NIKTT's main operations take place on Kaurna Country. 

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