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 Community-led Governance Council

Yarn with us about a proposed Community-led Governance Council

The National Indigenous Kidney Transplantation Taskforce (NIKTT) began as a time limited taskforce focused on improving access to kidney transplantation for Aboriginal and Torres Strait Islander people. Now, we are working towards becoming a sustained, Community led body guided by people with lived experience of kidney disease and transplantation.

Why are we yarning

After five years of work alongside Community, clinicians, and governments, NIKTT is looking ahead to how this work continues. We want to make sure the next phase is guided by Aboriginal and Torres Strait Islander voices.


To do this, we are proposing a Community‑led Governance Council made up of Aboriginal and Torres Strait Islander people with lived experience of kidney disease and transplantation to help shape how our people access kidney transplant care and how partnerships with governments, health systems, and communities are built.

This governance model also supports the goals of Priority Area 2 of the National Strategy for Organ Donation, Retrieval and Transplantation, which focuses on equitable access to transplantation for Aboriginal and Torres Strait Islander people and people in rural, regional and remote areas.

Being upfront about next steps

While there is currently no funding to establish the proposed Governance Council, NIKTT is seeking community guidance now so that any future proposal to government is grounded in a model designed by Aboriginal and Torres Strait Islander people with lived experience.


Your input will help ensure what we take forward to government truly reflects what Community wants and how Community wants this work to be done.

Participants will be reimbursed for their time and contributions during the yarning sessions.

Join an online yarning session

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  • Thu, 19 Feb 2026 | 2–3 pm (SA Time)

  • Mon, 23 Feb 2026 | 12–1 pm (SA Time)

  • Wed, 25 Feb 2026 | 11 am–12 pm (SA Time)

  • Thu, 26 Feb 2026 | 1–2 pm (SA Time)

  • Mon, 2 Mar 2026 | 10–11 am (SA Time)

  • Wed, 4 Mar 2026 | 11 am–12 pm (SA Time)

  • Tue, 10 Mar 2026 | 11 am–12 pm (SA Time)

  • Wed, 18 Mar 2026 | 11 am–12 pm (SA Time)

RSVP or ask questions

To register or find out more, email info@niktt.com.au with the time you would like to join. Once your session is confirmed, we will send you the draft documents and meeting details.

The National Indigenous Kidney Transplantation Taskforce is funded by the Commonwealth, represented by the Department of Health, in contract with the Transplantation Society of Australia and New Zealand (TSANZ) and the South Australian Health and Medical Research Institute (SAHMRI), housed within Australia and New Zealand Dialysis and Transplant Registry (ANZDATA). The NIKTT's main operations take place on Kaurna Country. 

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